Our Coming Events!

GENERAL MEETING - We will be holding our next Vasculitis meeting on April 10, 2010 from 11:00am - 4:00pm in Cambridge, Ontario.  At the meeting the guest speaker will be Dr. Khalid, who will be speaking on Vasculitis and how it attacks our bodies. She is from the reknowned St. Joseph's Hospital in Hamilton.  Come join us and learn about the possiblities of how vasculitis disease can affect your body in various ways. We will be having basket draws, plus other give aways and prizes. Get involved and meet new friends and share your experiences with others who understand about your disease. Your registration will also include a hot roastbeef lunch with all the trimmings, don't be left out book early.

Also click on our current events at the top of the page (in black) for other up coming events in your area.

My name is Cindy and I was diagnosed in 1996 with Neuro-Behcet's.

My journey started 1 year after having my son. (After 5 years of trying) My first major flare was when I was watching T.V. and all of a sudden I got this execrating pain in behind my left eye. It felt like someone had taken an ice pick, jabbed it into the back of my eye and started to push it out from behind. There was a lot of pressure. Then my left eye started to close and droop, followed by left sided numbness of my face. Also I started loosing sensations on the right side of my body along with weakness. I was taken to the hospital and then rushed to another by ambulance. They thought I had an aneurysm. I was sent for an angiography right away. This test turned up negative and I was told that I probably had a rare form of migraines. ( I had suffered from migraines since I was a teen but this was not my ordinary migraine). I was then sent home after my tests came back negative.