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Welcome to the Vasculitis Foundation Home Page
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Vasculitis - What is it? |
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Vasculitis is an inflammation of the blood vessels, arteries, veins, or capillaries.
This inflammation causes a weakening and narrowing of the blood vessel walls that deprives affected tissues and organs of blood supply resulting in tissue or organ damage. It is also considered an autoimmune disease. An autoimmune disease occurs when the body mistakes its own cells for foreign invaders and produces antibodies to attack the perceived invaders as a defense against infection. Vasculitis Foundation Canada represents a family of 15 rare diseases.
Vasculitis can affect any blood vessel or organ in the body. Signs and symptoms of Vasculitis varies widely in type and severity. Some are specific to a particular organ and others are non specific causing general aches, pains and fatigue. Organ systems affected include the skin, joints, lungs, kidneys, gastrointestinal tract, blood, eyes, brain, nerves, sinuses, nose and ears. Its cause is unknown. It affects people of all ages, gender, race and nationalities. Some types of Vasculitis are more likely to occur in certain populations than others.
Early diagnosis is critical. Vasculitis can be treated with prescription medications with the goal of stopping the inflammation and relieving the symptoms. Corticosteroid medication and cytotoxic medicines are the drugs that are commonly prescribed. There is no known cure for Vasculitis and its course varies from person to person. Some people go into remission. For others, the disease remains chronic with recurring relapses. In rare cases, Vasculitis causes severe disability or death. |
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CORD 5th Annual Conference |
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Canadian Organization for Rare Disorders (CORD) – 5TH Annual Action Day
Parliament Hill February 28, 2012 & rare Disease Day Conference (Feb 29-mar 1)
Canada is the only developed country without a definition of a rare disorder/disease and a regulatory policy to support them. About 1 in 12 Canadians is affected by a rare disorder/disease – that’s 8% of our population!
The key message that Action Day delegates delivered was a call for the federal government to move on the implementation of a regulatory framework for rare diseases and a policy for orphan drugs. Without the regulatory structure and drug policy, the availability of therapies for rare disorders is very limited (half of what’s available in the US). Fortunately, strides have been made in the past few years to adopt an official definition of what a rare disorder is but nothing is concrete yet…
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"15 REASONS WHY TO WALK'
Vasculitis Foundation Canada is proud to announce the 3rd Annual 15 Reasons Why to Walk Event!
There are "15 Reasons Why To Walk" on Saturday, June 23th 2012 at Riverside park, Cambridge, ON - Registration begins at 10:00AM at the park, or PRE- REGISTER below. Help us strengthen awareness and raise funds so we can increase research and education of patients, family members, friends and the medical community.
Join us on the day, or by making a donation. NO DONATION IS TOO SMALL BUT GREATLY APPRECIATED!
Can't join us on that day...no problem! You can still have all the fun setting up your own donation page and inspiring others to help you out. We will even provide you with your own volunteer walker. So no matter if your near or far you can still participate.
REGISTRATION IS NOW OPEN!
Click to register and for more information. |
"15 REASONS WHY TO WALK'
Vasculitis Foundation Canada is proud to announce the Annual West Coast Annual 15 Reasons Why to Walk Event!
There are "15 Reasons Why To Walk" on Saturday, June 23th 2012 at the Fire Hall, 5851 Duncan Street, Duncan, B.C., right across from the new Vancouver Island University (where there is lots of parking) - Registration begins at 10:00AM at the park, or PRE- REGISTER below. Help us strengthen awareness and raise funds so we can increase research and education of patients, family members, friends and the medical community.
Join us on the day, or by making a donation. NO DONATION IS TOO SMALL BUT GREATLY APPRECIATED!
Can't join us on that day...no problem! You can still have all the fun setting up your own donation page and inspiring others to help you out. We will even provide you with your own volunteer walker. So no matter if your near or far you can still participate.
REGISTRATION IS NOW OPEN!
Click to register and for more information. |
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Radio Interview – January 9, 2012
Correspondence was received December 11, 2011 offering a special tool for us to educate and inform people about Vasculitis Foundation Canada. This was to be in the form of a radio interview.
Cameron Wells of CJAM Radio, 99.1 FM, Windsor is the host of a show entitled “Handi Link”. It airs on Mondays from 8 a.m. to 9 a.m.. The base topic is – Issues surrounding people with disabilities. He offered the opportunity to highlight
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Vasculitis Donates Again - PEXIVAS
On October 22, 2011, Vasculitis Foundation Canada gave $15,000.00 to the St. Joseph’s Healthcare Foundation for vasculitis research under the name PEXIVAS.
Dr. Michael Walsh of the Department of Clinical Epidemeology and Biostatistics, McMaster University Health Science Centre, Hamilton along with Dr. Peter Merkel, Boston, Massachusetts, USA and Dr. David Jayne, Cambridge, England work together in this program.
Dr. Walsh has submitted the following:
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CanVasc Speech - Donna Wall |
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June 10, 2011 – CanVasc – Toronto, Ontario
When I was approached to speak to you, it was with a couple trains of thought that I pondered my acceptance. One – how can I possibly enlighten this learned assembly about vasculitis? Two – the opportunity to speak about a subject so dear to my heart could not be ignored.
Vasculitis – a large umbrella looming over our heads has issued an ultimatum – do or die. We have all, in our individual ways, stepped up to the plate and countered this threat with determination, strength of purpose and a focus on winning, not just
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Vaculitis Foundation 15 Reasons to Walk |
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Vasculitis Foundation Canada
15 Reasons to Walk
June 25th, 2011
The Vasculitis Foundation Canada would like to extend our thanks to all the volunteers, organizers and participants and donators for another extremely successful campaign.
Through the hard work and dedication of all those involved the Foundation enjoyed a wonderful turnout,
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